Welcome to the INPDR
Niemann Pick Diseases (NPD) are rare, progressive conditions with many unanswered questions. More time is needed to better understand how they affect people and progress over time. The International Niemann Pick Disease Registry (INPDR) - A joint initiative between patient organisations and clinicians involved in the care of people with NPD was established to better understand NPD so that potential treatments can be developed as quickly as possible
Welcome to the INPDR
Niemann Pick Diseases (NPD) are rare, progressive conditions with many unanswered questions. More time is needed to better understand how they affect people and progress over time. The International Niemann Pick Disease Registry (INPDR) - A joint initiative between patient organisations and clinicians involved in the care of people with NPD was established to better understand NPD so that potential treatments can be developed as quickly as possible